Delays in obtaining diagnosis and treatment cost the individual money, their independence and their health
Recent rule changes (March 2016) mean your GP must inform the DVLA if they consider you are sleepy and are intending to continue to drive. While perhaps well-meaning, trust between doctors and patients, arising from the threat of release of that information, has been destroyed.
Below is the exact quote from the GMC, “Confidentiality: reporting concerns about patients to the DVLA or the DVA” [accessed 25 April 2016].
Personal information may, therefore, be disclosed in the public interest, without patients’ consent, and in exceptional cases where patients have withheld consent, if the benefits to an individual or to society of the disclosure outweigh both the public and the patient’s interest in keeping the information confidential.
While, NHS sleep studies would be the normal route sadly due to their resource limitations they are not usually able to diagnose and treat patients as quickly as we all would like.
Add to this, commonly held concerns over confidentiality and the misperception that sleep apnoea kills your career and perhaps now it is easier to understand, why some people do not consult their GP about their sleepiness at work.
These concerns may be especially true for those employed in ‘vigilance critical’ roles (truck, taxi, bus drivers, pilots etc) as they may be advised to stop work immediately and cannot resume until effectively treated.
What are the fundamental differences between anonymous and confidential sleep study testing?
Terms such as privacy, confidentiality and anonymity are often mixed up:
Classification of medical data
|Anonymous||NO NAMES are used or any other personal identifiable data. |
Your sleep study test results are stored separately from personal identifiable data and nobody - not even snorer.com or the consultant that confirms the diagnosis knows who the report belongs to.
|Confidential||Sleep study test results are associated with key personal identifiable data e.g. name, address, DoB, postcode and other identifiers.|
A short animation to illustrate why confidential testing and anonymous testing are very different, even though they sound like they should provide the same level of privacy and security.
Why is ANONYMOUS testing needed?
If you were involved in a serious accident, your medical history could be released to:
- The Police
- Your employer
- Your insurer
With a confidential sleep test your results are associated with key personal identifiable data e.g.
- Date of birth
- and other identifiers
Your name is on the report… and it connects your condition/diagnosis with you.
These are the facts behind the fear of consulting a GP about excessive sleepiness.
ANONYMOUS sleep apnoea testing overcomes these barriers.
With the ASAP Anonymous Sleep Apnoea Process™ only YOU can access your test results/report
ASAP℠ means that your name is never associated with your report, and you are the only person who knows what your results are.
We don’t know what your results are and the Doctor assessing your data doesn’t know who you are. This process does not involve your own Doctor/PCP. No ‘Scientific Research’ exemption is used to waive your anonymity.
We provide anonymous sleep apnoea testing (and an accelerated route to NHS treatment), simply to provide a way to test for sleep apnoea and get treated rapidly.
We do this because we recognise that some people will not come forward for help the ‘traditional’ way (see above).
Rather than these people continue without treatment, harming their own health and potentially placing others at risk due to an increased risk of accidents, ASAP Anonymous Sleep Apnoea Process(tm) provides an alternative way to test and be diagnosed without the use of subterfuge, obtain any necessary treatment via the NHS and get back to work rapidly.
Rather than continuing to insist that people conform with the system (which we recognise they don’t) we have adapted the system to ‘meet people halfway’.
Who can access your test data
if you don’t have an Anonymous sleep study?
If you had an accident
The Police and other authorities can obtain your medical history
GP (Your Doctor)
You must stop driving as soon as your GP suspects you have sleep apnoea
Your employer may suspend you from driving as they have a duty (Health & Safety Executive) to make your workplace safe
AnonymousASAP Anonymous Sleep Apnoea Process™
- Nobody but you can access your test results
- We have only anonymised and encrypted files
- eeZed Ltd has no knowledge of or access to your test results
- Papworth Hospital have your test data but not your name or address
ConfidentialWho has your test data?
- Your GP must now inform the DVLA if they believe you will continue to drive. Even if you do not consent for them to do so.
- The Consultant who assessed your data has your name and diagnosis.
- The Police. If you are involved in an accident* can obtain your name, address, DoB, medical history and diagnosis.
- The DVLA. If your diagnosis affects your ability to drive you are legally obliged to inform the DVLA. If you are a vocational driver the rules are tougher still about when you must stop.
- Your insurer. If your diagnosis affects your ability to drive you must also inform your insurer.
- Your employer. If you drive, fly or operate machinery as part of your employment and your diagnosis affects your ability to do these things, you are legally obliged to inform your employer.
* Case-control studies starting with patients having accidents (n = 102) rather than OSA suggested that those with OSA were 4–7 times more likely than control subjects (n = 152) to have had an accident, despite controlling for some potential confounders.
Editorial, Driving and obstructive sleep apnoea, Thorax, Prof Emeritus John Stradling, (2008) Thorax 2008;63:481-483 doi:10.1136/thx.2007.090860. [Accessed 23 November 2015 http://thorax.bmj.com/content/63/6/481.full]
Created by Emma Easton | Page last updated 1st Feb 2017 | ASAP™ is CE marked standalone, software as a medical device (SaMD).
ASAP™ manufacturer is Snorer.com Ltd. Sleep House, 94 High Street, Sutton Courtenay, Abingdon, Oxfordshire, OX14 4AX. UK.